Who can see my information?
Click on the video below to hear about protecting your information in clinical trials.
Research staff can see your information. These researchers received special training about how to protect your privacy.
Note:
- Sometimes researchers share study details with other researchers. These details will not have information that can identify you.
- Some studies collect information that can identify you. Researchers will keep this information separate from other information. Information that can identify you has extra levels of protection to keep it safe.
- Your consent form outlines who may have access to your information. By signing it, you acknowledge your rights and your role in the study. This may include researchers storing your information in a secure database.
Click here to read the NIH Clinical Center’s Patient Bill of Rights