What are my rights as a research participant?

Click on the video below to hear a real story about safety and ethics in clinical trials.

Your rights are to:

  • Be treated with respect.
  • Be fully informed in different aspects of your treatment plan, outlined and explained during the consent process and within the clinical trial protocol.
  • Decide not to take part in a study.
  • Leave a study at any time.
  • Ask for information in the language of your choice or ask someone to help you interpret.

Note:

  • These are your rights whether you choose to take part in a study or not.
  • Those with special needs can receive assistance.
  • All hospitals are required to offer translation services.
  • Clinical trials must follow strict guidelines.

Click here to read the NIH Clinical Center’s Patient Bill of Rights