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Patient Rights

 

Learn more of what the government and researchers do to protect participants today

 

Gain understanding into research mistakes of our past

  • Tuskegee Study (1932-1972) researchers did not tell participants all the study information. By today’s standards, participants could not join a study without all the information. The Tuskegee Study also withheld medical treatment from participants. Today, research studies can’t prevent high quality medical care.
  • Henrietta Lacks received a medical procedure in 1951. Medical research staff did not inform her about using a sample of cells from the procedure. Today, a study cannot use someone’s cells unless they consent to the research plan.

 

Lessons learned from past research mistakes

Click on a link below to learn about past mistakes and present improvements to protect study participants:

 

Trust and clinical trials research

Click on a link below to see what recent research says about trust in clinical trials

 

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